The Long Home

I wrote about Catherine and Buddy here several years ago. We were neighbors then, but the Redhead and I moved back to town shortly after I told you that little rose-colored glasses tale.

Over the last four years I have passed back and forth by their house many times. Last time I stopped was at the beginning of the pandemic. I dropped off a couple of N95 masks and told them to be careful if they went to town. Looked like there was going to be a bad virus going round, and they were saying it was going to be hard on old folks.

Since, one or both usually on the porch whenever I pass. They wave. I wave. Me always thinking I should stop and talk a minute, just check on them, but I never did. In a hurry. Felt too bad. Needed to get on home. Next time. Whatever excuse worked that day.

Shame passes quickly when you develop the knack. Still, I asked myself “What kind of person behaves this way?”

I never liked the answer. Still don’t.

Today Catherine is out by the mailbox. She flags me down, arms waving, as in ‘you need to stop, and you better stop now.’

“Buddy wants to see you. He’s got some questions he wants to ask you. Go on up. I’ll be up directly.”

He sits on the glider, as always. I shake his hand and move to the guest chair, diagonal from him about four feet away.

“Good to see you,” he says. “How you been lately?” He always says that.

“Not so good. I’ve been sick since I got bit by a tick a while back and –”

“Huh?” he says.

I try again, but it is obvious that he can’t hear me. I look to the yard for help, but Catherine is still dawdling by the Knockout Rose, which is gorgeous this year. I cross the porch and reposition myself in her chair to be at his ear.

He continues. “You heard any turkeys gobbling this year?”

“No, I haven’t been down here at sunrise in a while. You know I can’t get around in the woods like I used to since I’ve been sick, so I didn’t go at all this year.”

“Huh?” he says. Didn’t hear a word of it.

“Used to be a lot of turkeys around here, but not no more. Last time I saw a turkey gobbler was four, maybe five years ago. I come to the door one morning and there was one standing at the far end of the yard. He was tall as my waist. Beard hanging down nearly ‘bout to the ground. He took off running right down the road towards your place. I heard a shot a little while later down in the bottom. I figure it was that Lewis fellow that lives down at the crossroads. You know he hunts all the time – don’t pay no attention whatsoever to whether the season’s in or not. I’ll bet that was the turkey I saw, ‘cause I ain’t seen him again since.”

“Probably,” I say. Add a nod for good measure.

“You ever seen things in as big a mess as we’re in? I tell you that Joe Biden is running this country in the ground.”

The next several minutes are a non-stop soliloquy about the mess we’re in. The war in Ukraine. The open borders. High prices for everything. The disappearing work ethic. It is animated and punctuated by profanity, the kind once reserved only for sailors like him.

I do a lot of nodding. The name “Trump” never comes up just in case you are wondering. It is not a rant about what could have been, or should be, or might still could be. It is about what is.

After a while he seems satisfied that he has said what he needed to say, and we both sit quietly. Catherine has finally come up and sits down in the guest seat. She looks back and forth, at him, at me, as if she is following a conversation between us, even though none is occurring.

We all just sit. Silence is acceptable porch etiquette in the South. Even expected. As much a part of the conversation as the words.

Buddy looks at neither of us. His gaze is straight ahead as if he might be watching that gobbler walk over the hill.

“You know, I worked down at the car dealership in town for 38 years. I was a good mechanic, could take any Chevrolet apart, car or truck, from bumper-to-bumper. Put it all in a pile then turn right around and put it all back together again. All them years I fixed the town people’s cars. When I left there they was paying me four dollars an hour. I woke up one day and said, ‘to hell with it.’ They don’t appreciate me no more than that they can get somebody else.

I heard the town was building a water treatment plant. I put in an application, and they offered me the job because they knew I could mechanic. I had to drive down to Montgomery for a while to go to a school to learn how to run it. Got a class three degree in wastewater treatment so I’d know how the thing was supposed to work.

I ran that plant for ten years. Just me. Whole time I was on call 24/7. If anything went sideways, I’d drive in and fix it, day or night. I didn’t make a bunch of money there either, but they bought me a pickup truck so I didn’t have to wear out mine driving back and forth.

Them State boys would come up and inspect everything regular, but they never did find nothing wrong. I got to be fairly good friends with one of them. He’d say “Buddy, how come you don’t keep several of everything you might need in the shop so you don’t have to go get a part when something breaks down?” I told him I didn’t see any point in that. If I needed a part or a tool I’d just get in the truck and go get it.  Why spend money on keeping inventory in a room just sitting around? That’s foolish. Then he said, “why don’t you keep any tools in your truck?” I said why would I, everything thing I need to work with is right here. No point in carrying around a bunch of extra weight in a truck, burning gas and wearing it out. I got tools at home if I need them around my place.

I told them going in that I would work until 63, then I was going to retire. That’s what I did.

Thirty-eight years at the car place and ten at the treatment plant. I never made no real money, but we had enough to get by. We got our place here and everything’s paid for, don’t owe nobody any money. We get social security from the government and that covers what we need, as long as Joe Biden don’t take that away and give it to them people he’s letting into this county.

I worked all of them years. Never complained about low wages or getting up in the middle of the night cause some alarm went off at the plant. Never stole nothing, not so much as a wrench or even a bolt to use on something here at the house.”

A pause. He looked at me and then looked down. A single tear rolled down his cheek.

“What was it all for?”

He began to cry. Cry like when somebody tells you your momma’s dead. Great shuddering sobs. His voice became high-pitched and childlike. His words Faulkneresque, one long stream-of-consciousness sentence punctuated by little gasps between sobs. His hand at his lips, the way old folks subconsciously do when they’re afraid their false teeth might slip out.

Catherine gets up and stands by him, hand on his shoulder. She looks at me, expressionless.

“I’m 96 years old. I hurt all over all the time. My knees and elbows and back – every part of me. I can’t hardly walk so I don’t go nowhere anymore unless she takes me to the doctor, and that’s a wasted trip ‘cause they don’t do a damn thing except give me some other kind of pill to take. I can’t hear nothing. I can’t see nothing. I can’t eat nothing that tastes good cause they won’t let me have any salt. I can’t sleep no more, day or night, cause I’m always hurting so bad. All I do is sit here on this porch or inside the house, day after day, night after night. Why don’t I just die? I ought to just kill myself and be done with it.”

Ah, I think. The ghost of Christmas future.

“No,” I say. “Ain’t no good going to come from that.”

It’s all I can think of to say that I will say. I know I bit of Hebrew poetry written by The Preacher in Ecclesiastes 12 that describes this journey to the long home. But I won’t read it to him. Not today. Vanity of vanities.

He is done talking. His gaze is at the floor. The tears still roll, but he is regaining his composure.

Catherine begins to explain. I don’t know if he can hear her. Maybe, maybe not.

“He ain’t in too good a shape. He can’t hear it thunder, and the hearing aids I got him don’t work. He’s got a cataract on one eye, so he don’t see too well neither. He’s got arthritis and he has two cysts, one on each kidney. They doctor says they are both benign, but they make him hurt. That mesh they put in him when he had his hernias fixed has broke loose, so it moves around sometimes and that hurts him too. That’s why he has trouble sleeping. He can’t get comfortable. They won’t operate on him. Did you know they won’t operate on you once you reach 90?”

“Yes ma’am, I did know. Can’t they give him anything for pain? Anything to help him sleep?”

“Oh, they have, but it don’t work. He won’t eat much I fix him because they won’t let him have any salt in his food – they say sodium, but they are really talking about salt. You know food don’t have much flavor without salt. I can’t do much for him. He just sits around day and night watching TV or out here on the porch.”

“Hey Buddy,” I holler. “Listen, you don’t need to be sitting around all day watching Fox News. You can’t do anything about the shape this country is in, so quit listening to those people talking about it all the time. Find you something good to watch, like Andy Griffith or Gunsmoke. Find you a good old cowboy movie.”

“I don’t watch Fox News.”

“Yes he does,” she says. “Yes you do,” she hollers.

“I don’t,” he says again. He has regained his composure. Now Stoic.

We talk awhile longer, Catherine and me.

“What can I do for him? Could I bring him something sweet to eat?

“Oh, I fix him sweets. He just can’t eat salty things.”

I’m running out of ideas. I try one more.

“Buddy, how about I stop back by in a couple of days. I’ll bring my buggy and we will take a ride over to the back side. Maybe you can show me where your grandaddy’s mule barn was? You told me about it one time.”

“I’d like that,” he says.

I get up to go. We shake again. “Well, I have to get home now.”

“Stop again next time you pass.” He always says this.

What was it all for?

It’s the question we all must ask ourselves if we live long enough.

I have my beliefs, but The Book says beliefs aren’t worth anything without action.

I chew on that on the ride home.

Maybe the answer is as simple as stopping by to sit on a porch every now and then.

Little Ship of Dreams

I got an email one morning just the other day that announced the upcoming North American Tour of the ‘70s rock band Heart. A stop in Birmingham later this year, and Ticketmaster thought I should know. I am not sure why. A YouTube video I clicked on, or some all-seeing/all-listening electronic entity noticed I always turn the volume up on my truck radio whenever “Barracuda” or “Dreamboat Annie” play.

I was intrigued. I clicked on the link to see what seats were available and how much.

Turned out two good ones at $130 per.

I almost got up to get my credit card, but I decided to mull it over until evening. The waiting was difficult because of a memory.

It was in ’79 or ’80. A brown-eyed boy asked a red-haired girl out on a date. One of the two in love – had been for quite some time. The other, not so much.

I got the friendship date. A few hours with her would be worth the cost.

It was, by the way, expensive. Eight dollars a piece on the seats. Probably ten to fill up the tank of the Camaro to drive to Birmingham and back. Another ten for dinner and concessions. All in, somewhere around $36.

You laugh and wish you were around in “the good old days.” But keep in mind that I only had a part-time-after-school-and-Saturday job. Minimum wage was $3.10. I had a solid 12 hours of sweat commitment to that girl. If that ain’t love, love never was.

My memory is that it was a great show. I did not win her heart that evening, but I recall a hug and a little peck on the cheek. Money well spent.

Back to the present day, forty some odd years later. I kept turning that sweet memory over in my mind as I drove down the road, the radio tuned to a “classic rock” station. “Barracuda” came on as if by magic. My mind made up. It had to be fate. I would pull the trigger on the tickets when I got home.

Then fate actually made an appearance. The DJ (what is the correct term for that vocation today, “streaming digital song selector?”) mentioned that Heart was about to launch a tour, and they had appeared on one of the late-night T.V. shows to kick things off. If I missed it, I could catch it on YouTube.

I did. Wow.

That sweet, amazing soprano voice was mostly gone. Her sister’s guitar work was adequate but labored. Frankly, I had heard better covers of the song. They looked and sounded so old. How could that be?

Because they are. So am I. I keep forgetting.

I passed on the tickets. Let Dreamboat Annie’s “little ship of dreams” sail on through Birmingham.

Besides, the investment paid off. I eventually got that Redhead to love me back.

I told you it was money well spent.

Ten: Full Circle

There is a philosophical principle from the 14th century that is often paraphrased “when faced with a problem, the simplest explanation is usually the best one.”

I have chronic Lyme Disease and coinfections. Since I had no neurological symptoms before I was hospitalized this is the simplest explanation. The course of antibiotics I received (which was less than even the most conservative doctors recommend) was not enough to eliminate all the bacteria.

I am sure that you have noticed that a recurring theme from my medical visits was “there is no Lyme disease in Alabama,” or “Neurological Lyme is very rare.” You may wonder, as I did initially, why a doctor would not just say “Lyme disease can cause the symptoms you are experiencing, so let’s explore it.”

After reading numerous books and hundreds of articles over the last two years, I think I can briefly answer that question.

First, most doctors have little training in the diagnosis of Lyme Disease and other tick-born illnesses. Lab testing for these bacteria is archaic and notoriously inaccurate. The most common tests detect antibodies in the bloodstream (an immune response), not bacteria. Such can be successful for diagnosing acute infections (as I had in the hospital), but less so for chronic infections due to a compromised immune system and the ability of these bacteria to “hide” in connective tissues and within cells. As a result, many people are misdiagnosed as having an autoimmune disease, or even worse labelled as having an “idiopathic illness.”

The second reason is that treatment for chronic cases is controversial. The Center for Disease Control and Prevention (CDC) and the American Medical Association (AMA) do not recognize the existence of chronic Lyme and therefore will not approve antibiotics for treatment. This creates a situation in which doctors are afraid they may lose their license if they make a diagnosis based on symptoms rather than a positive test.

The result of these two circumstances has created an industry of “specialists” who treat Lyme with long-term antibiotics and other therapies “under the radar.” They do not accept health insurance, which means that sufferers must pay thousands of dollars out-of-pocket for treatments and procedures that may or may not be effective.

Which brings me full circle in this tale.

After all my research I have decided to aggressively self-treat for a few months. This is why I chose to “semi-retire.” I knew this would require self-discipline of an almost religious fever and all my time and energy.

I will not bore you with all the details of my regimen. It involves a very strict anti-inflammatory diet, daily moderate exercise, adequate rest, and an herbal protocol developed by the late Stephen H. Buhner in his book Healing Lyme (Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsioses).

Will it work? I have no idea. But I can report that I am six weeks in and have made remarkable progress in alleviating many of my symptoms, including an astonishing improvement in my balance and ability to walk.

If it does not? Then I move on to the next thing on the Redhead’s list of “all the things.”

As I wrote in the beginning, this series of posts is intended to be a cautionary tale. Its ultimate purpose is to convince you to follow some simple precautions when you spend time in the woods (or even your backyard) in tick-infested areas.

I recommend you do the following (at a minimum):

Wear light-colored clothing so you can see ticks before they reach your skin.

Tuck your shirt into your pants and your pant legs inside your boots or socks.

Use tick-repellant spray.

And above all, check yourself carefully for tick bites when you undress.

Finally, if you are bitten, find a doctor who will prescribe 30 days of antibiotics. If they need convincing, tell them you know someone with Lyme and you want to be proactive.

Enjoy the great outdoors but stay healthy, dear reader.

We will now return to the blog about nothin’ in particular…

Nine: All the Things

*This post is part of a series. If you are new to the story begin here.

I had been sick for two years. Bounced from doctor to doctor with lengthy periods of waiting in between. I was looking for a diagnosis, and confident that my young doctor at Emory was the one who would finally get me back on a path to health. She had ordered “special tests,” and I only needed to wait two more weeks for the answer.

Actually, I saw no reason to wait until the appointment.

All the prior doctors had “patient portals.” These are internet sites through which you can access your medical records – appointments, lists of medications, test results, and messages. It is where the Redhead accumulated all the information that was in The Book.

Over the next three days, I received an email notification from Emory each time a new entry appeared in my medical record. These were the tests and the results. I was unfamiliar with most of them. Names like “Free Light Chains” and “Protein Electrophoresis.”

One addition to the Emory reporting system was an exclamation point (!) beside the test if the results were abnormal.

There were six tests – four had exclamation points.

I did not know what any of it meant, but I knew who did. I consulted “Dr. Google.”

Dr. Google had bad news. There were two likelihoods: multiple myeloma (a type of white blood cell cancer originating in the bone marrow), or a rare genetic condition called amyloidosis. Neither was good. My future included bone marrow biopsies and chemotherapy. Waitin’ around to die type stuff.

I got a second opinion from Dr. YouTube, who concurred.

I know it may sound hard to believe, but I was not devastated by the news. I was more stoic. In some strange way I was relieved that I had an illness with a treatment. When you are sick for a while, especially undiagnosed, you begin to think you might be crazy, and you are quite sure that others think you are.

The terrible thing about this experience was that I knew the Redhead was on her laptop across the room every night, conducting the same internet investigation.

One night I finally broached the subject.

“You know I have multiple myeloma, right?” I have never been one to beat around the bushes.

She began to cry.

“Hey,” I said. “It’s okay. We will get through this. I am strong.”

“I am glad to hear you say that, because I am going to need you to be.”

And that was that.

Another week passed and we made the trip back to Atlanta. We did not go straight to see the doctor but instead went to an exam room to get another Electromyography (EMG) test. This was a repeat of an earlier exam by another neurologist to determine if my neuropathy was progressing.

After a brief wait, the doctor came in with her intern in tow.

“Sir, the good news is that your neuropathy is not progressing. I have run all the tests that we have at our disposal, and I am sorry to say that your case is idiopathic. I simply cannot find an explanation.”

“You mean I don’t have multiple myeloma or amyloidosis?”

“No, no! Some of your test results were a little high, but nothing like we would expect to see with either of those conditions.”

I felt like all the air had gone out of the room. I was relieved – but stunned.

“So, what is next?”

“It is hard to say. You have some inflammation somewhere in your body which indicates some sort of autoimmune disorder. All we can do is try and manage your symptoms. I will give you some medication for your nerve pain and we will go from there. Sometimes cases like yours resolve themselves. It could be six months, a year, or a decade, but your symptoms may go away on their own. I am going to schedule an appointment to see you again in one year. In the meantime, call me if your nerve pain worsens. We may have to try several medications before we find one that works for you.”

We were quiet for a while on the ride home.

“Well, I guess we’re at the end of the line.”

“No,” she said.

“We have seen everyone I know to see and done everything we know to do. What else is there?”

“All the things,” she said. “We are going to try all the things.”

Eight: Southern Hospitality

I had lofty expectations for Emory.

I thought a medical school and research hospital must surely be the kind of place where collaboration and innovation were commonplace. I imagined doctors and professors in the cafeteria having coffee and discussing their days. One doctor would say, “I had this unusual case yesterday. The patient was bit by a tick and now he has forgotten how to walk,” and another doctor would say, “Wait a minute, I read about a case like that in Zimbabwe in 2011. We may have Patient Zero! Get him back in here. I will list you as co-author on the article I will write for Neurology Today.

My experience was only a little like that.

The first neurologist I saw was an attractive middle-aged Columbian woman who spoke the King’s in the manner of someone who learned the language classically rather than through Rosetta Stone. She spent an hour with me going through The Book, asking questions about this test or that. She and the Redhead discussed anomalies and their pertinence to a diagnosis.  

She spent a lot of time looking at the Electromyography (EMG) test results. She checked my reflexes with a small rubber hammer and an instrument that looked like a tuning fork and stuck me with a needle at various points on my feet and hands.

“Do you feel this? This? How about now?”

She looked thoughtful for a moment. “You have ‘glove and boot’ neuropathy. It is not the classic manifestation of carpal or tarsal tunnel. The nerves are not conducting above the typical compression points. This EMG report and diagnosis is not altogether accurate.”

We went down the “cause” list as I had done with all the others. No diabetes, alcoholism, heavy metals, pesticide exposure or family history of autoimmune disease?

I asked if it could be Lyme Disease, since all my symptoms originated after hospitalization.

“Neurological Lyme Disease is very rare in Georgia.”

I let it go.

I asked if I was going to get worse.

“It is difficult to say. I am going to refer you to one of my colleagues who specializes in neuro-muscular medicine. She will want to repeat your EMG and run some additional blood tests to make a diagnosis.”

We returned two weeks later.

This doctor was a young Ecuadorian. She brought along another young resident doctor, and we spent well over an hour rehashing my history.

She asked some questions that none of the other doctors had.

“Do you have dry mouth?”

Yes.

“Digestive issues?”

Yes.

“Do you perspire normally?”

No, I meant to mention that. I have always been a heavy sweater, but now I never break a sweat, even during a hard workout at the gym or being outside.

She and the resident exchanged glances.

“Interesting.”

We ran down the list of causes of neuropathy again.

She sighed. “Sir, you need to understand that 20-30% of all cases of peripheral neuropathy are idiopathic. Do you know what this word means?”

I said I was fairly sure that it meant the doctor either was not clever or caring enough to figure out a diagnosis. That was why I was at Emory, and why I was so happy that she was my doctor.

I think she smiled behind that Covid mask. At least her eyes smiled.

“I am going to run some extremely specific blood tests, including a genetic profile that may reveal a few rare mutations that can cause symptoms like yours. We will repeat the EMG test when you come back to see if there has been any progression in damage to the nerve function.”

She walked us to the front and told the receptionist to make me an appointment in two weeks. She patted my shoulder and winked. “See you again soon.”

I was hopeful. She was the one. We would only have to wait two more weeks to finally get the answer.

I did not realize that it would be the longest two weeks of the two-year ordeal.